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The only licenced medication for the treatment
of familial chylomicronaemia syndrome (FCS)1

The only licenced medication for the treatment of familial chylomicronaemia syndrome (FCS)1

Resources for you and your patients

You can download the documents directly to your computer/device or if you would prefer hard copies please contact us on +44 (0) 330 1590 174.

  • RESOURCES FOR YOU
  • RESOURCES FOR YOUR PATIENTS
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AKCEA CONNECT Service -Information for HCPs 

Date added:
August 2020

File Size: 2.6 mb

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Waylivra Prescribing Guide 
 

Date added:
August 2020

File Size: 505 kb

Jane and Jackie's story

Living with FCS
Jane & Jackie’s story 

Date added: August 2020

Length: 03:43

Krish's story

Living with FCS
Krish’s story 

Date added: August 2020

Length: 05:07

Waylivra Injection Guide

Date added:
November 2020

Length: 06:36
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AKCEA CONNECT Patient Information
Date added: August 2020 File Size: 2.1 mb
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About Waylivra
 

Date added:
August 2020

File Size: 2.3 mb

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My Waylivra Treatment Tracker

Date added:
August 2020

File Size: 1.3 mb

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My Waylivra Injection
Guide

Date added:
August 2020

File Size: 1.6 mb

Jane and Jackie's story
Living with FCS
Jane & Jackie’s story

Date added: August 2020

Length: 03:40

Krish's story
Living with FCS
Krish’s story

Date added: August 2020

Length: 05:04

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Search ‘FCS Connect App’ to download the app

Reference: 
1. Waylivra SmPC, 2019.
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How can you refer a patient onto the Akcea Connect service?

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Patient registration

You will need to complete a patient registration form and a prescription (provided to the Trust by Akcea Connect service providers) and send them to the Trust pharmacy. Upon approval, they will be sent to Akcea Connect service providers to arrange the dispensing and delivery of the medication.
Or call the Akcea Connect number below
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Informing your patients

The patients will be given a leaflet to explain that their data will be transferred from the NHS to Akcea Connect service providers. All parties involved will have a data sharing agreement. The leaflet will also show patients where to find the privacy notices of the NHS, and Akcea Connect service providers.