Tegsedi logo
Tegsedi: the first & only subcutaneous at-home
treatment to silence the TTR gene in hATTR1–3
Tegsedi: the first & only subcutaneous at-home treatment to silence the TTR gene in hATTR1–3

Resources for you and your patients

You can download the documents directly to your computer/device or if you would prefer hard copies please contact us on +44 (0) 330 1590 174.

  • RESOURCES FOR YOU
  • RESOURCES FOR YOUR PATIENTS
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AKCEA CONNECT Service -Information for HCPs

Date added:
August 2020

File Size: 3.1 mb

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Tegsedi Prescribing Guide
 

Date added:
August 2020

File Size: 1.9 mb

Patrick's Story
Living with hATTR
Patrick’s story

Date added: August 2020

Length: 04:11

Patrick's story: Life on Tegsedi
Life on Tegsedi
Patrick’s story

Date added: August 2020

Length: 02:19

Stuart's story
Living with hATTR
Stuart & Elspeth’s story

Date added: August 2020

Length: 04:15

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Introduction to hATTR
 

Date added:
August 2020

File Size: 1.3 mb

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Akcea Connect Service – Information for patients

Date added:
August 2020

File Size: 3.1 mb

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About Tegsedi
 

Date added:
August 2020

File Size: 1.3 mb

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Tegsedi Injection Guide
 

Date added:
August 2020

File Size: 696 kb

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Tegsedi Injection Mat  

Date added:
August 2020

File Size: 696 kb

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My Tegsedi Treatment Tracker

Date added:
August 2020

File Size: 1.4 mb

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Connections Newsletter June 2020 edition

Date added:
August 2020

File Size: 1.4 mb

Patrick's story: Life on Tegsedi
Life on Tegsedi
Patrick’s story

Date added: August 2020

Length: 02:19

Patrick's Story
Living with hATTR
Patrick’s story

Date added: August 2020

Length: 04:11

Stuart's story
Living with hATTR
Stuart & Elspeth’s story

Date added: August 2020

Length: 04:12

References:

1. Tegsedi SmPC, October 2019.
2. Benson MD, Waddington-Cruz M, Berk JL, et al. Inotersen Treatment for Patients with Hereditary Transthyretin Amyloidosis. N Engl J Med. 2018;379(1):22−31.
3. Brannagan TH et al. European Journal of Neurology 2020, 0:1-8. Published online 28th April 2020.

hATTR, Hereditary transthyretin amyloidosis; TTR, transthyretin.
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How can you refer a patient onto the Akcea Connect service?

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Patient registration

You will need to complete a patient registration form and a prescription (provided to the Trust by Akcea Connect service providers) and send them to the Trust pharmacy. Upon approval, they will be sent to Akcea Connect service providers to arrange the dispensing and delivery of the medication.
Or call the Akcea Connect number below
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Informing your patients

The patients will be given a leaflet to explain that their data will be transferred from the NHS to Akcea Connect service providers. All parties involved will have a data sharing agreement. The leaflet will also show patients where to find the privacy notices of the NHS, and Akcea Connect service providers.